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Behavioral/Genetic Counseling/Psychosocial Research Publications

Biesecker BB, Ishibe N, Hadley DW, Giambarresi TR, Kase RG, Lerman C, Struewing JP. Psychosocial factors predicting BRCA1/BRCA2 testing decisions in members of hereditary breast and ovarian cancer families. Am J Med Genet 2000; 93:257-263

Kenen R, Peters J. The Colored Eco-Genetic Relationship Map (CEGRM): A conceptual approach and tool for genetic counseling research. J Genet Counseling 2001; 10: 289-309

Peters JA, McAllister CL, Rubinstein WS.  The genetic counselor as a qualitative researcher, Part I: Experiences of a novice ethnographer in a cancer clinic. J Genetic Counseling 2001; 10:133-150

Peters JA, McAllister CL, Rubinstein WS.  The genetic counselor as a qualitative researcher, Part II: Findings from an exploratory ethnographic study in a cancer clinic. J Genetic Counseling 2001;10:151-168

Applebaum-Shapiro SE, Peters JA, O’Connell JA, Aston CE, Whitcomb DC.  Motivations and concerns of patients with access to genetic testing for hereditary pancreatitis. Am J Gastroenterol 2001; 96:1610-1617

Peters JA, Loud J, Dimond E, Jenkins J.  Cancer genetics fundamentals.  Cancer Nursing: An International Journal for Cancer Care 2001; 24:446-461

Loud JT, Peters JA, Fraser M, Jenkins J.  Applications of advances in molecular biology and genomics to clinical cancer care. Cancer Nursing: An International Journal for Cancer Care 2002; 25: 110-122

Rubinstein WS, O’Neill SM, Peters JA, Rittmeyer LAJ, Stadler MP. Mathematical modeling for breast cancer risk assessment: State of the art and role in medicine. Oncology 2002; 16:1082-1094

Peters JA, Kenen R, Giusti R, Loud J, Weissman N, Greene MH. Exploratory study of the feasibility and utility of the colored Eco-genetic relationship map (CEGRM) in women at high genetic risk of developing breast cancer. Am J Med Genet 2004; 130A:258-264

Loud JT, Hutson SP. The art and science of cancer nursing in the genomic era. Sem Oncol Nursing 2004; 20:143-144

Hutson SP, Loud JT. Cancer genetics resources – A guide for nurses and patients. Sem Oncol Nursing 2004; 20:213-215

McInerney-Leo A, Biesecker BB, Hadley DW, Kase RG, Giambarresi TR, Johnson E, Lerman C, Struewing JP. BRCA1/2 testing in hereditary breast and ovarian cancer families: Effectiveness of a problem-solving training as a counseling intervention. Am J Med Genet 2004; 130A:221-227

Trepanier A, Ahrens M, McKinnon W, Peters J, Stopfer J, Grumet SC, Manley S, Culver JO, Acton R, Larsen-Haidle J, Correia LA, Bennett R, Pettersen B, Ferlita TD, Costalas JW, Hunt K, Donlon S, Skryznia C, Farrell C, Callif-Daley F, Vockley CW.  Genetic cancer risk assessment and counseling: Recommendations of the National Society of Genetic Counselors.  J Genetic Counseling 2004; 13:83-114

Green MJ, Peterson SK, Baker MW, Friedman LC, Harper GR, Rubinstein WS, Peters JA, Mauger DT. Use of an educational computer program before genetic counseling for breast cancer susceptibility: effects on duration and content of counseling sessions. Genet Med 2005; 7:221-229

Wideroff L, Vadaparampil ST, Greene MH, Taplin S, Olson L, Freedman AN. Hereditary breast/ovarian and colorectal cancer genetics knowledge in a national
 sample of US physicians.
J Med Genet 2005; 42:749-755

McInerney-Leo A, Biesecker BB, Hadley DW, Kase RG, Giambarresi TR, Johnson E, Lerman C, Struewing JP. BRCA1/2 testing in hereditary breast and ovarian cancer families II: Impact on relationships. Am J Med Genet 2005; 133A:165-169

Loud JT, Weissman NE, Peters JA, Giusti RM, Wilfond BS, Burke W, Greene MH. Deliberate deceit of family members: a challenge to providers of clinical genetics services. J Clin Oncol 2006; 24:1643-1646

McInerney-Leo A, Hadley DW, Kase RG, Giambarresi TR, Struewing JP, Biesecker BB. BRCA1/2 testing in hereditary breast and ovarian cancer families III: Risk perception and screening. Am J Med Genet 2006; 140A:2198-2206

Peters J, Hoskins L, Prindiville S, Kenen R, Greene MH. Evolution of the Colored Eco-Genetic Relationship Map (CEGRM) for assessing social functioning in women from hereditary breast/ovarian cancer families. J Genetic Counseling 2006;15:477-489

Peters JA, Vadaparampil ST, Kramer J, Moser RP, Peterson-Court LJ, Loud J, Greene MH. Familial testicular cancer – Interest in genetic testing among high-risk family members. Genet Med 2006; 8:760–770

O’Neill SM, Peters JA, Vogel V, Feingold E, Rubinstein W. Referral to genetic counseling: Are there stages of readiness? Am J Med Genet Part C Semin Med Genet 2006; 142C:221-231

Weil J, Ormond K, Peters JA, Peters K, Biesecker BB, LeRoy B.  The relationship of nondirectiveness to genetic counseling: Report of a workshop at the 2003 NSGC Annual Education Conference.  J Genetic Counseling 2006; 15:85-94

McDaniel SH, Peters JA, Acheson L.  Professional collaboration to assess and care for genetic disorders. in Individuals, Families and the New Era of Genetics (Miller SM, McDaniel SH, Rolland JS, Feetham SL, Eds.), New York, WW Norton, pp. 530-559, 2006

Hutson SP, Alter BP. Experiences of siblings of patients with Fanconi anemia. Pediatr Blood Cancer 2007; 48:72-9

Mueller C, Mai P, Bucher J, Peters JA, Loud JT, Greene MH. Patterns of complementary and alternative medication use in women at increased genetic risk of breast and ovarian cancer. BMC Compl Alt Med 2008; 8:17, E-Pub

Peters JA, Beckjord EB, Ryan DR, Carr AG, Vadaparampil ST, Loud JT, Korde L, Greene MH. Testicular cancer and genetics knowledge among familial testicular cancer family members. J Genet Counsel 2008; 17:351-364

Koehly LM, Peters JA, Kuhn N, Hoskins L, Letocha A, Kenen R, Loud J, Greene  MH. Sisters in hereditary breast and ovarian cancer families: Communal coping, social integration and psychological well-being. Psycho-Oncology 2008;17:812-821

Bakos A, Hutson S, Peters J, Giusti R, Carr A, Greene MH, Loud J. Transition from high-risk to BRCA mutation-negative status among women from hereditary breast/ovarian cancer families. Health Expectation 2008;11:220-231

Hoskins LM, Roy K, Peters JA, Loud JT, Greene MH: Disclosure of Positive BRCA1/2-Mutation Status in Young Couples: The Journey from Uncertainty to Bonding through Partner Support. Fam Syst Health 2008; 26:296-316

Alter BP, Denny CC, Peters JA, Giri N, Wilfond BS. Disclosure of “Unwanted” Genetic Information to Benefit a Family Member with Dyskeratosis Congenita. Am J Med Genet A 2008; 146A:2719-2724

Vadaparampil ST, Moser RP, Loud J, Peters JA, Greene MH, Korde L. Factors associated with testicular self-examination among unaffected men from multiple-case testicular cancer families. Hered Cancer Clin Pract 2009; 7:11, E-Pub

Loud, JT, Beckjord E, Peters J, Nichols K, Giusti R, Greene MH. Tolerability of breast duct lavage in women from families at high genetic risk of breast cancer. BMC Women’s Health 2009; 9:20, July 14, E-Pub

Koehly LM, Peters JA, Kenen R, Hoskins L, Ersig AL, Kuhn N, Loud J, Greene MH. Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: Implications for family health communication interventions. Am J Public Health 2009; 99:2203-2209

Savage SA, Dokal I, Armanios M, Aubert G, Cowen EW, Domingo DL, Giri N, Greene MH, Orchard PJ, Tolar J, Tsilou E, Van Waes C, Wong JMY, Young NS, Alter BP.  Dyskeratosis congenita: The first NIH clinical research workshop. Pediatric Blood and Cancer 2009; 53:520-523.  

Loud JT and Hutson S. “Chapter 7: Genetic Risk and Hereditary Cancer Syndromes.” in Yarbro CH, Wujcik D, Gobel GH (Eds), Cancer Nursing:  Principles and Practice. (2010) Sudbury, Massachusetts: Jones and Bartlett.

Peters JA. Genetic Counselors – Caring Mindfully for Ourselves. in “Genetic Counseling Practice: Advanced Concepts and Skills” (LeRoy BS, PM Veach, DM Bartels, eds). Wiley-Blackwell, New York, pages 307-352, 2010  

Mai PL, Wideroff L, Greene MH, Graubard BI. Prevalence of family history of breast, colorectal, prostate, and lung cancer in a population-based study. Public Health Genomics 2010; 13:495-503

Wideroff L, Garceau AO, Greene MH, Dunn M, McNeel T, Mai P, Willis G, Gonsalves L, Martin M, Graubard BI. Coherence and completeness of population-based family cancer reports. Cancer Epidemiol Biomarkers Prev 2010; 19:799-810

Loud JT.  Direct-to-consumer genetic and genomic testing:  Preparing nurse practitioners for genomic healthcare. J Nursing Pract 2010; 6:585-594

Mai PL, Garceau A, Graubard BI, Dunn M, McNeel T, Gonsalves L, Polednak T, Warren J, Gail MH, Greene MH, Willis G, Wideroff L. Confirmation of family cancer history reported in a population-based survey. J Natl Cancer Inst 2011; 103;788-797 

Peters JA, Kenen R, Hoskins LM, Koehly LM, Graubard R, Loud JT, Greene MH. Unpacking the blockers: Understanding perceptions and social constraints of health communication in hereditary breast/ovarian cancer (HBOC) susceptibility families. J Genet Couns 2011; 20:450-464

Mai PL, Malkin D, Garber J, Schiffman J, Weitzel JN, Strong L, Wyss O, Lock L, Means V, Achatz MI, Hainaut P, Frebourg T, Evans DG, Bleiker E, Patenaude A, Schneider K, Wilfond B, Peters J, Hwang P, Ford J, Tabori U, Ognjanovic S, Dennis P, Wentzensen IM, Greene MH, Fraumeni JF Jr, Savage SA. Li-Fraumeni syndrome: Report of the first clinical workshop and creation of a research consortium. Cancer Genetics 2012; 205:479-487

Hoskins L, Roy K, Greene MH. Toward a new understanding of risk perception among young female BRCA1/2 "previvors". Fam Syst Health 2012; 30:32-46

Hoskins L, Roy K, Greene MH. Anticipatory loss and early mastectomy for young female BRCA1/2 mutation carriers. Qual Health Res 2012; 22:1633-1646

Peters JA, Kenen R, Hoskins LM, Kratz CP, Greene MH. Close ties-An Exploratory CEGRM (Colored Eco-Genetic Relationship Map) Study of Social Connections Among Men in Familial Testicular Cancer (FTC) Families. Hered Cancer Clin Pract 2012; 10:2, E-pub

Werner-Lin A, Hoskins LM, Doyle M, Greene MH. Cancer doesn’t have an age – Genetic testing and risk management in BRCA1/2 mutation-positive women. Health 2012; 16:636-654